First Name Hayley #10. Hayley Okines: Funeral held for '100-year-old teenager' progeria campaigner. It affects just 124 children worldwide and causes accelerated ageing. She was known for spreading awareness of the condition. Funeral of Hayley Okines who died of Progeria Syndrome. The obituary was featured in Legacy on April 3, 2015. May 5, 2015 - Read the latest Meridian stories, Funeral for Hayley Okines to take place this afternoon on ITV News, videos, stories and all the latest Meridian news "We were just so proud of her and what she wanted to do with her life about raising awareness of progeria...", he said. Loved ones, our heavenly Father has promised that by means of his heavenly Kingdom, Hayley's life will be restored and she will return to her youthful vigor to enjoy eternal life in Paradise. Book a DIRECT CREMATION starting from £1,095. HAYLEY OWEN FUNERAL DIRECTOR in YORK FAMILY RUN BUSINESS. The BBC is not responsible for the content of external sites. Hayley died earlier this month at the age of 17. The Prince of Wales has paid tribute to a girl known as "the 100-year-old teenager" as mourners gathered at her funeral. Hayley Okines Obituary (1997 - 2015) LONDON (AP) — A campaigner who raised awareness of the rare genetic condition progeria, which causes those affected … Hayley Okines, who suffered from the rare genetic condition Progeria, has died aged 17 (Image: Channel 5). Sagittarius Author #10. ", .css-1hlxxic-PromoLink:link{color:inherit;}.css-1hlxxic-PromoLink:visited{color:#696969;}.css-1hlxxic-PromoLink:link,.css-1hlxxic-PromoLink:visited{-webkit-text-decoration:none;text-decoration:none;}.css-1hlxxic-PromoLink:link:hover,.css-1hlxxic-PromoLink:visited:hover,.css-1hlxxic-PromoLink:link:focus,.css-1hlxxic-PromoLink:visited:focus{color:#B80000;-webkit-text-decoration:underline;text-decoration:underline;}.css-1hlxxic-PromoLink:link::after,.css-1hlxxic-PromoLink:visited::after{content:'';position:absolute;top:0;right:0;bottom:0;left:0;z-index:2;}Hayley Okines: Mourners celebrate teenager's short life, Progeria campaigner Hayley Okines dies aged 17, .css-q4by3k-IconContainer{display:none;height:1em;width:1em;vertical-align:-0.125em;margin-right:0.25em;}playGirl, 14, has 100-year-old body, CCTV of couple wanted over theft at rural farm shop, Road closed and train delays after car crashes into level crossing, Balance classes launched in Arun to help prevent falls, Feeling unwell? © 2020 BBC. .css-yidnqd-InlineLink:link{color:#3F3F42;}.css-yidnqd-InlineLink:visited{color:#696969;}.css-yidnqd-InlineLink:link,.css-yidnqd-InlineLink:visited{font-weight:bolder;border-bottom:1px solid #BABABA;-webkit-text-decoration:none;text-decoration:none;}.css-yidnqd-InlineLink:link:hover,.css-yidnqd-InlineLink:visited:hover,.css-yidnqd-InlineLink:link:focus,.css-yidnqd-InlineLink:visited:focus{border-bottom-color:currentcolor;border-bottom-width:2px;color:#B80000;}@supports (text-underline-offset:0.25em){.css-yidnqd-InlineLink:link,.css-yidnqd-InlineLink:visited{border-bottom:none;-webkit-text-decoration:underline #BABABA;text-decoration:underline #BABABA;-webkit-text-decoration-thickness:1px;text-decoration-thickness:1px;-webkit-text-decoration-skip-ink:none;text-decoration-skip-ink:none;text-underline-offset:0.25em;}.css-yidnqd-InlineLink:link:hover,.css-yidnqd-InlineLink:visited:hover,.css-yidnqd-InlineLink:link:focus,.css-yidnqd-InlineLink:visited:focus{-webkit-text-decoration-color:currentcolor;text-decoration-color:currentcolor;-webkit-text-decoration-thickness:2px;text-decoration-thickness:2px;color:#B80000;}}Paying tribute to her daughter, Kerry Okines said she could not imagine life without her "little chick". Hayley Okines Popularity . “É um funeral aberto, mas pedimos as pessoas que deem um pouco de privacidade para ir ao crematório”, escreveu a mãe dela, Kerry Okines, em sua página no Facebook. Funeral of Hayley Okines who died of Progeria Syndrome. Hayley Okines, who has campaigned to raise awareness of the rare genetic condition Progeria, has died at the age of 17. Hayley Okines Is A Member Of . The funeral was marked with a special message from the Royal, who said he was "deeply impressed" by the 17-year-old as she battled the rare illness Hayley Leanne Okines (3 December 1997 – 2 April 2015) was an English author and activist who was a sufferer of the extremely rare aging disease progeria. She was also the subject of a number of television documentaries. What an object lesson we all can learn from her: to value the gift of life and look forward to a better future. Hayley was being treated for pneumonia and had briefly returned home from hospital on 2 April, the day she died. At age 2, she was diagnosed with progeria, a condition that causes children to age eight times faster than the average human. 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Hayley Okines, 17, died in East Sussex earlier this month from progeria, which causes sufferers to age eight times faster than normal. Report by Ashley Fudge. Autobiographer #3. By Ewan Palmer. Mum Kerry carrying the coffin with dad Mark blue shirt behind. VOTED IN THE "BEST THREE" FOR YORK 2019 & 2020 winners. The funeral for a girl known as "the 100-year-old teenager" takes place in Bexhill-on-Sea, and tributes flood in for Hayley Okines - from loved ones to royalty. Funeral of Hayley Okines who died of Progeria Syndrome. HUNDREDS of mourners turned out to pay tribute to the “100-year-old teenager” whose funeral took place today. The condition is so rare it is believed that fewer than 100 people in the world have it. A letter from the Prince of Wales was read out in which he recalled "her infectious love of life" and described Hayley as "an inspiration to millions". VideoWhy it's getting harder to escape from North Korea, A decision that changed my family's story, 'Finally, these clothes look like they're meant to be worn', 'Iraq's ghost militias have got me on their hit-list', How China silenced voices and rewrote Covid history, Striking news photos from around the world in 2020, The tragedy of the tuk-tuk driver who fled Covid. Church in Sidley hayley died earlier this month at the age of 13 but underwent pioneering drug treatment a... 2, she was not expected to live past 13 but she did not let faze... 2004, Prince Charles has led tributes to the girl dubbed the '100-year-old teenager Progeria. Are due to be given on Monday, amid concern over rising coronavirus cases autobiography..., Prince Charles has led tributes to the challenge, seized the day and made the BEST of.. Condition that causes children to age eight times faster than the average human causes children to age times! 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